(2) You tested "normal" cognitively. This is good because their was always a huge risk for cognitive delay or even mental retardation due to your congenital CMV diagnosis. I felt confident while the psychologist was doing the "testing", but there's always that "WHAT IF" looming in the back of my mind. The psychologist also stated that she doesn't anticipate any cognitive delay for the future. Sure, you may have trouble with reading or math, but you are not at any higher risk for these issues compared to other kids your age (we think-ish, but there is no crystal ball, so we've been told).
(3) You met with the Nutritionist because you were so small at birth. You're just fine. On that good ol' Growth Chart, after all. In the 30th percentile to be exact! PS ~ You didn't even make the chart until your 6 month birthday. Apparently you've been making up for lost time.
(5) Your "hearing age" is that of about a 2-4 month old. So, you've got some work to do, BUT we just had speech therapy today and you're beginning to say a few words! WORDS I SAY!!! Not, just sounds (which you do ALL THE TIME) but words ~ "Bubba" for brother, "Bu" for ball, "Hi", "Bye" and an occasional Mamama and Dadada! It's been tricky for me to say that you actually have words because I just can't believe it! You don't say them much and NEVER on command, but you say them. The other day you were looking for your brother who was up in his room. You crawled up the stairs and said, "Bubba, Bubba" the entire way. When you found him, you pointed to him, and squealed, "Bubba!" and then you stopped! Keep up the good work, little man! We're continuing to work on vowel sounds (eee and ooo are hard for you) and patterns of speech. We've also been working on distinguishing between 2 and 3 syllable words. I swear you'll be a better listener and talker than all of us one day.
And the (6th) and final thing we learned at the Waisman Center is that you "clearly display characteristics of Cerebral Palsy because of hyper tone in the lower extremities that hinder overall movement". So, you have Cerebral Palsy, but not technically. You see, it wasn't actually written down. Like, in your FILE. You know, like officially. And here is why: If you have a diagnosis of CP, our insurance company will DROP all therapy coverage for you. CP is forever and they don't want to pay 'forever'. You will not receive any physical therapy, or occupational therapy (if you need it in the future for those darn thumbs), or speech therapy un-related to verbal communication, such as feeding issues or sensory issues or oral motor issues that result from CP, which can be fairly common. So, your doctor decided to not give you an official CP diagnosis at this time. Instead, your diagnosis is "hypertonic, spastic muscles, treatable by Botox".
Oh dear, Botox. You've had it twice. The first time, back in March, wasn't too bad. Three pokes in one muscle on each leg. This time was awful. Like, so bad that I NEVER want to put you through it again... so please, please walk soon. It was even worse than watching them place multiple IVs in your skull during your NICU stay. Last week, you endured 16 injections. Eight shots in three different muscles in each leg. You cried and clung to me and shook your head "no!" the entire 5-10 minutes it took. Awful. That's all I can say about that. *Tears*
So, we're going to see how far you can get by October, which is your next scheduled Waisman appointment. I hope, hope, hope you'll be walking by then because maybe that'll mean no more Botox. Also, if you are walking I'll feel more confident in our Physical Therapy being dropped when your CP diagnosis is given. Obviously, we would appeal if insurance denied coverage, but that could take weeks if not months and right now I don't want you missing out on that special time with Jim (your PT).
Speaking of Jim and your Physical Therapy... you've been busy and you don't necessarily enjoy yourself while you're there. That Jim, he sure makes you work!
Here's a perfect example of one of Jim's brilliant ideas that you are totally not diggin'. He's trying to encourage you to balance and STAND on your own without holding onto anything. You refused. Completely.
However, Jim has introduced you to something you're quite fond of...