You were also sedated for an MRI and CT (twice).
Inthe meantime, however, I was slowly noticing things… Things that I had been told might NEVER happen… were. You were smiling (at everyone) and making eye contact. You were able to hold your head up. You were playing with toys while lying on your back. You began eating solid foods, like a regular ol’ kiddo. You were sitting up – it was difficult, but you were doing it. You were reaching for toys and playing. You laughed and mimicked your brother. Again, all of these things we were told you may never be able to do because of an extreme cognitive delay. You were defying the odds. Could it be possible? I still wasn’t sure. I still wasn’t convinced because it seemed like everything I read about babies born with CMV was negative. Many babies are very severely disabled…
So, long story short, you’ve had A LOT of work to do! But, I wasn’t worried. I knew you had it in you even when they told me that statistically, kids born with CMV have a harder time adjusting to their Cochlear Implant, and we couldn’t forget that CP diagnosis, which could reveal some oral motor issues as time went on that could hinder your ability to communicate verbally as well.
As of today, you have 19 words (about 10 of those you say consistently all the time) and you’re understanding most of what is being said to you. Things that are really normal for hearing children are HUGE for you. The fact that I can say, “give Mama kisses” or “shoes on” or “where’s your belly?” or “give Mama a bite” and you UNDERSTAND is so, so big. I just cannot express how huge this is and how proud of you I am.