Well, it's been some time since my last letter. We've just been so busy and I've been neglecting my blog, but I've vowed to you and Wil (and to myself because, let's face it, this here blog is my therapy) that I'll get back into the swing of things.
You were fit for your first pair of orthotics back in early February. They are called Sure Steps and are no bigger than a napkin. See!
You've been working hard at physical therapy and had your first round of Botox treatments to your inner hamstrings. 3 shots in each leg and it HURT! However... Botox IS amazing and apparently it's not just for the Real Housewives of Orange County. The spasticity you have in your hamstrings doesn't seem to effect your overall movement, but it does effect your sitting, which you will notice in the picture to the right. Obviously, this pic is old and you've improved your posture quite a bit in the last few months (thanks to a lot of core work outs during PT), but this depicts your overall sitting ability quite well.
The muscles in your legs are so tight and this forces you to lean forward while you sit (not the most comfortable position while you play), but since the Botox, we've noticed a huge difference. Your back is straighter, you are able to put your legs out in front of you, rather than have them at a 90 degree angle, and you're able to balance a whole lot better. However, you've learned quickly that this is your least favorite position to be in and since the crawling began, I can't keep you sitting for long. Your next goal is to get into the sitting position on your own. Believe it or not, you never learned how to do that because it was too hard to get those legs in the right position. Now that those hammies are loosey-goosey, we're trying to teach you that your body is under YOUR control! Hopefully relieving some of that tension in your legs will allow you to get around a little easier in general and give your other leg muscles the opportunity to work too. While your hamstrings were tight, your other muscles had to fight against them just to get some time in too. It's all so confusing!
Here is something else you've been working on... I've been trying to "bring your world up" to encourage more cruising from place to place as opposed to crawling. You've been doing a little better each day. Slow and steady you are, my friend. I'm trying not to put too much pressure on you to walk (your brother didn't walk until almost 15 months, after all). I'm trying to remind myself that you've got some catching up to do: you were basically 2 months early, you can't hear, which can effect your overall balance and coordination, and you've been battling your own self when it comes to making your legs work properly. I know you will walk some day, little mister. Until then, you'll be faced with this from time to time!
And last, but certainly not least, you've been working hard on HEARING! Your surgery for your Cochlear Implant was on February 28. They told us children as young as 12 months are allowed to be implanted and so we did... 5 days after your first birthday. Here you are waiting in your hospital gown to be carried (by your Mommy, thank GOD) to the operating room. (Notice the legs... this is PRE-Botox).
Just a few minutes post recovery. You did not "come out" of anesthesia all that well. You were fussy and seemed to be in pain (NOT typical for you) so it was hard to see you like this. I immediately questioned whether or not we had made the right decision to implant, which people warned me would happen. Also... take a look at that face... Swollen! This was hard too! I stayed with you in the hospital overnight and was nervous that it was going to be long, but you went to sleep around 9:00 and I didn't hear a peep out of you until 6:00 the next morning. You slept through every check of your vitals AND every time you were given medicine (orally), which was astonishing!
We were packed up and ready to leave quite early the next day because you were doing so well AND because they needed your room for another patient. Ok, we were literally kicked out, which made me real mad, but that's a story for another day. You are such a trooper. You and I did this all by ourselves. No one helped us or escorted us from the hospital. I was simply handed a wagon and we were sent home. With our turtle balloon we went... Can I mention again how sweet you are?!? You never fussed, even while we waited for a prescription at the pharmacy for 20 minutes. I cried, though. I did.